Just before his stem cell transplant: Insurers' recission of coverage

Peggy Raddatz, an Illinois resident, testified before a subcommiteee of the U.S. House of Representatives yesterday that Fortis Insurance Company attempted to drop her brother Otto from coverage just before he was to receive a stem cell transplant to treat his lymphoma. According to Peggy, the company sought to cancel her brother's insurance because it said he had failed to disclose that he had previously suffered gallstones and an aneurysm when he first signed up for his insurance policy.

But, Peggy said, her brother had never been informed of those conditions. They showed up only in a CT scan that was never revealed to him, she said.

Eventually, the company relented after they received weeks of her phonecalls, and pressure to do so from the Illinois Attorney General's office. Peggy said most policyholders who lose their insurance are not as lucky. Indeed, insurers have culled many thousands of such beneficiaries from their rolls.

You can see the brief video of her testimony here.

Do you want the option to choose coverage through the government instead of an insurer's coverage?

Advice: Call your Congressman and insist that the coming health care law include a public insurance option.

Read a story on why President Obama feels so strongly about insurance company denials. Thanks to Patrick Yoest for the source story today in CNN Money.com.

He's now a normal little boy: Cord blood donation

Happy Chanukah to our Jewish friends – tonight is the first night of the holiday. Jews celebrate the miracle in which a small amount of oil burned for eight full days, long enough to illuminate their temple restoration work.

Today's blog post tells of the vastly disproportionate restorative effect of a small amount of a very different fluid – a modern miracle. And it even gives you a holiday gift suggestion; read on.

Jack’s story:
Jack was born a healthy little boy but at around six months old he developed a simple cold. During the day he appeared to have recovered from his cold but at night he couldn't seem to shake off a persistent cough. Jack was admitted to hospital where blood tests revealed he was suffering from Severe Combined Immunodeficiency (SCID). SCID is a rare, inherited disorder causing a severe abnormality of the immune system, making it difficult for the body to fight infections. It can be fatal if left untreated.

Upon diagnosis, Jack was transferred immediately to the intensive care unit at Great Ormond Street Hospital in London, where they began the search for a stem cell transplant – Jack's only chance of survival. A perfect match to Jack's tissue type was found with a cord blood donor and on November 7th 2003, Jack received his life-saving cord blood transplant.

Steve and Ruth, Jack’s parents, said, "Looking at Jack now, you'd never know he'd once been so ill. He's now a normal little boy who goes to playgroup and plays with his toys. The cord blood donor gave us the chance of life for Jack and we will be forever grateful."


Ken's advice for an inexpensive, meaningful and readily available last-minute holiday gift: If you're having a baby, donate his or her umbilical cord blood. If you're not, call the Red Cross at 1-800-GIVE-LIFE (1-800-448-3543) to schedule a blood donation by you and your family.

Read a story about a man who survived with the help of numerous blood transfusions.

Thanks to the British National Health Service Cord Blood Bank for the source story on their web site.

One cup at a time: Alex's Lemonade Stand Foundation

Alexandra "Alex" Scott was born in Manchester, Connecticut in 1996, the second of four children. Shortly before her first birthday, she was diagnosed with neuroblastoma, a rare childhood cancer.

On her first birthday, the doctors told her parents that if she beat her cancer, it was doubtful she would ever walk. A year later, she was crawling and able to stand with leg braces. She willed herself to walk, and appeared to be getting better, until the shattering discovery within the next year that the tumors had returned. At age four, she received a stem cell transplant and told her mother, "When I get out of the hospital I want to have a lemonade stand." She wanted to give the money to doctors to help them find a cure. She held her first lemonade stand later that year, and raised $2,000 for "her hospital."

Alex continued to hold yearly lemonade stands in her front yard to benefit childhood cancer research. News spread, and people all over the world held their own lemonade stands and donated the proceeds to Alex's Lemonade Stand Foundation.

In August 2004, Alex passed away at age eight, knowing she had helped raise over $1 million to find a cure for children with cancer. Her three brothers and supporters are committed to continue her legacy.

Advice: Live with Alex as your role model.

Read another young hero’s story.

This is drawn from the foundation's bio of Alex.

A perfectly normal life, getting into trouble with the press: Geraldine Ferraro's multiple myeloma

Geraldine Ferraro's story:
Former Congressional and Vice Presidential candidate Geraldine Ferraro of New York will be the keynote speaker at the second annual "Reaching for a Cure" gala on Friday, May 2, at the Weston Boston Waterfront Hotel, funding research in multiple myeloma for the Dana Farber Cancer Institute.

I had run for the U.S. Senate in 1998, and was finding that I couldn't get up in the morning or stay up late at night; I was just too tired.

I went to my doctor for my annual checkup. He told me that I had either leukemia, lymphoma, or multiple myeloma. The prognosis was three to five years, but he said some patients had lived ten years and were still going strong.

Then my internist sent me to an oncologist/hematologist, and they said we should get an expert in multiple myeloma – Dr. Ken Anderson. He has been been caring for me ever since.

I was put on Aredia once a month. Later, I took thalidomide, and it helped a lot. When the cancer became active again, I went through another clinical trial for another new drug therapy with Revlimid. In December 2004 the doctors harvested my stem cells. I had the transplant in June 2005, the year I turned 70. But ten months later the cancer was active again, so I was put on Velcade. With the treatment, I live a perfectly normal life, giving speeches and getting into trouble with the press.

In 2001 I went public with my disease to help researchers get congressional hearings. I testified to Congress. Friends like Senators Patty Murray, Kay Bailey Hutchison, and Barbara Mikulski also knew about my disease, and they sponsored a research bill, the Hematological Cancer Research Investment and Education Act of 2002, and the Geraldine Ferraro Cancer Education program, to educate medical, patient, and policy communities on research advances.

The message is: If diagnosed, this cancer is not the end of the world. There is so much research today, and we can live with multiple myeloma as a chronic disease.

Geraldine Ferraro's advice: Patients need to be informed consumers: If your doctor is not a specialist, contact the people who are. Dana-Farber will answer questions from any doctors who reach out. Press for health care for all, so others can be treated. We have to address the high cost of cancer drugs. Write to your representatives.

Browse for related stories in the index at the very bottom of this page, or read another multiple myeloma story.

Thanks to Katie Smith Milway for the source article in the April 10 issue of the Needham [Massachusetts] Times.