Nine months after the 2010 IHI Forum

It's now nine months after the Leadership Summit at the IHI Forum in December 2010, and time to take stock again of our progress. At the IHI Forum we agreed as a group that our mission is to continually and measurably reduce medical errors, building an ever-growing coalition.

My previous updates about our progress have focused on our accomplishments as individuals; this one, for the first time, discusses our accomplishments as a group.

In the last week, a clear majority of our original group of activists/advocates (35 of the 54 of us) have signed a petition promoting transparency of hospitals' JCAHO reviews. Consumers Union and the Leapfrog Group, among other effective advocacy organizations, have joined us on the petition.

Our joint political agenda is emerging, as significant numbers of our members have also come together to spread the use of pulse oximetry among newborns, ban the use of gag clauses in medical settlements, and propose an Ad Council campaign to raise awareness.

Our Facebook group has quadrupled in size since its launch, to 197 participants.

This comes in the shadow of the tenth anniversary of 9/11. The math of our yearly toll from medical errors is grim: a 9/11 every eleven days. We have to get much better at working together. Our challenge is to plan together and collaborate with powerful organizations.

Keeping the love growing: James's Project

Mary Ellen Mannix's Valentine's Day card:

I hope you enjoy a wonderful day with your special valentine!

James's Project is working to keeping the love growing and we are wearing our hearts on our sleeves today.

This past month James's Project helped a pregnant mom get care she was being refused, a 2-year-old who had a tonsillectomy to find medical coverage for expenses and help in the infection treatment post-op, educate a heart baby's mom about what questions to ask and how to search for a doctor's license, and advocated at the national level for standardizing Congenital Heart Defect screening in newborns via the pulse oximetry.

They'll be godmothers to thousands: Pulse oximetry for newborns

On Oct. 13, Kathleen Sebelius, the Secretary of the U.S. Department of Health and Human Services, sent a letter formally recommending that hospitals perform pulse oximetry screening of newborn babies. This followed the formal recommendation of the Secretary's Advisory Committee for Hereditable Disorders in Newborns and Children, which had met a month earlier. Pulse oximetry is performed via a painless clip (imagine a soft clothespin) on the baby's foot, to measure the oxygen in their blood.

Sebelius' recommendation was made on the ninth anniversary of the death of Mary Ellen Mannix’s son, James. Mary Ellen has become an influential patient advocate since then, and participates on the advisory board of the (newly born) Newborn Coalition.

The Newborn Coalition and the mission to get pulse oximetry as a recommendation on the SACHDNC were spearheaded by Annamarie Sarinaan. Annamarie's daughter, born with a heart defect, got good, error-free care, and survives.

Bravo to Annamarie and Mary Ellen, who will soon become virtual godmothers to the babies who will be healthier as a result of their work!

Advice: Forward this to your friends who are expecting a baby, and have them send this to their obstetricians.