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Showing posts with label liver transplant. Show all posts
Showing posts with label liver transplant. Show all posts

Sunday, March 7, 2010

When you most need it: Anthem Blue Cross' denial for Ephram Nehme's liver transplant

Readers, I almost never use the name of providers and other organizations that are involved in outrageous decisions or errors. This case deserves to be an exception.


Anthem Blue Cross is a large insurer in California, part of the Wellpoint company. Anthem’s parent, Wellpoint, declared profits of $4.5 billion in the most recent quarter. A few weeks later, Anthem Blue Cross decided to raise its rates for members in California by 39%. A year earlier, Anthem's staff had denied an expensive life-saving liver transplant to Ephram Nehme.

Ephram had emigrated to the U.S. from Lebanon, moving to New York City after high school. There, he paid his way through accounting school by pumping gas and selling umbrellas. He yearned to start his own business. Twenty years after working for other people, he did so, opening a produce market in southern California, and then another one.

Following a blood transfusion in the 1970s, he had gotten hepatitis. He was able to manage the condition for many years with medication. But by late 2006, his doctor, a liver disease specialist at UCLA, told him it was time for a liver transplant.

Given the quirky rules for liver donation, the relatively small number of liver donors in California, and the urgency of his need, Ephram's doctors told him to promptly seek a transplant out of state. To Anthem Blue Cross, that meant "out of network," and they denied his request.

Ephram got a lawyer, who filed a lawsuit in Los Angeles Superior Court.

The denial stated that his score on a liver disease scale (the MELD – Model for End-Stage Liver Disease) was in a gray zone that did not necessarily justify a transplant. Ephram's lawsuit includes a copy of the letter from a doctor confirming that the MELD score was not in the gray zone, but rather was at a level indicating a prompt liver transplant was clearly required. In other words, the letter proved that Anthem had been incorrect. When learning of their error, staff at Anthem then changed their justification for the denial, saying that Ephram's "noncompliance," and inadequate medical therapy by the UCLA Transplant Center, had caused his situation, so that they need not pay for the very expensive procedure.

By 2006, Ephram was too sick to fight, so his wife called and begged Anthem to reconsider their denial. While the appeal was pending, Ephram's doctor convinced him that waiting too long could be disastrous. Anthem again formally refused to pay for the life-saving transplant.

Luckily, Ephram had enough money to move to Indiana and spent $200,000 of his savings for a hospital there, where he received a successful liver transplant in January 2007.

"If I hadn't," he said, "I'd be gone."


We don't give insurance companies many thousands of dollars a year of our money out of charity, or because we want to support their executives' lavish lifestyles. The only reason why people spend many thousands of dollars a year in health insurance is so that, if they become desperately ill, even a very expensive procedure will be paid for and provided. When an insurance company takes our premiums and realizes a huge profit, and jacks up their premiums so they will make even more in the future, and denies the life-saving procedures whose payment is the only thing that justifies their existence, something is deeply wrong with the status quo.

Advice: If you like our health insurance system to operate like this, do nothing to support healthcare reform, and it will act exactly like this when you most need it.

Read another story about an insurer’s denial for life-saving treatment. Thanks to Lisa Girion for writing the online Los Angeles Times story of October 7, which provided certain background details.

Wednesday, December 23, 2009

Don't ever come back: Barriers to palliative care

Dr. Bruce Ferrell, who helps lead the palliative care program at UCLA Medical Center, recalls a patient two years ago who got a liver transplant but developed serious complications afterward and remained in the hospital for a year. "He had never ever been told that he would have to live with a ventilator and dialysis," Dr. Ferrell said. "He was never told that this was as good as it's going to get."

Dr. Ferrell talked with the patient about whether he might want to leave the intensive care unit (ICU) to go home and receive hospice care. But when the surgeon overseeing the case found out, he was furious.

"We do not use the h-word [hospice] on my patients," the surgeon told Dr. Ferrell. "Don't ever come back."

The patient chose to leave.

The UCLA Medical Center consistently ranks as one of the most expensive places in the U.S. to get end-of-life care, though its patients' outcomes are similar to hospitals that spend much less.

Advice to patients near the end of life: Even when in the hospital, you can insist on considering hospice care.

Read a story about hospice care. Thanks to Reed Abelson for the source story in today's New York Times.

Saturday, December 22, 2007

The insurer had initially refused to pay: A liver transplant lawsuit

Nataline Sarkisyan was a very sick teenager. She had been diagnosed at 14 with leukemia. Her cancer went into remission after two years of chemotherapy, but it returned last summer.

The day before Thanksgiving, she received a bone marrow transplant from her brother. Unfortunately, a complication caused her liver to fail.

Her parents asked CIGNA, their insurer, to authorize a liver transplant. CIGNA initially refused to pay for it, saying it did not cover experimental or unproven treatments.

Four doctors at UCLA submitted a letter to CIGNA on December 11 that urged the insurer to reconsider, saying that in Nataline's case the liver transplant would be neither experimental nor unproven. They cited the survival rate in such cases.

The University of California at Los Angeles Medical Center told the family on Dec. 14 that a liver was available, if the family could pay a down payment of $75,000, in view of CIGNA's denial of authorization. The family couldn’t afford it.

On Thursday, Dec. 20, following a rally by 150 nurses and community members outside its office in suburban Los Angeles, CIGNA changed its decision. But it was too late; Nataline died a few hours later.

Nataline's father has retained a lawyer, Mark Geragos, to bring a lawsuit against the insurer, asserting the initial refusal of the liver transplant contributed to Nataline's death.

Advice: Check the customer satisfaction ranking of your insurer, and switch if their rankings are low.

Browse for related stories in the index at the very bottom of this page, or read a story about the affordability of a liver transplant.

Thanks to Alicia Chang for the source article in today's Boston Globe.

Tuesday, December 4, 2007

Evel Knievel: Hepatitis from a blood transfusion

Evel Knievel, the red-white-and-blue-spangled motorcycle daredevil, died yesterday at age 69. He had been in failing health for years, suffering from diabetes and pulmonary fibrosis, an incurable condition that scarred his lungs.

He had undergone a liver transplant in 1999 after nearly dying of hepatitis C, probably contracted through a blood transfusion in one of his 14 surgeries to repair bone-shattering spills.

Now the blood supply is safer, and hepatitis C from transfusion is less of a worry.

Advice to patients undergoing surgery: You or your patient advocate should double-check that the donor's blood type matches yours.

Browse for similar stories in our index at the very bottom of this page, or read another blood transfusion story.

Thanks to Mitch Stacy for the source story in today's Boston Globe.

Wednesday, November 14, 2007

Everyone thought I was crazy: Medical tourism for a liver transplant

Last year, Kevin Stewart learned he had cirrhosis of the liver, and that a liver transplant was his only option.

He owns a landscape maintenance business in Naples, Florida. Because of the high premiums for self-employed businessmen, he let his health insurance lapse.

Luckily, he had a potential donor – his sister – so he called hospitals to see how much a liver transplant would cost. "It was $30,000 for them to check me out – to see how worthy I was, how badly I needed a liver. And, if they decided I needed a liver transplant, I should pay them $300,000," he said – much more than he could afford.

To look to other countries for medical treatment, he contacted WorldMed Assist, a medical tourism web site. They researched his situation and identified two hospitals that could perform the liver transplant, both in India.

Kevin chose a New Delhi hospital and a surgeon who had already performed 120 liver transplants.

Four months after the transplant, Kevin is doing fine, recuperating in the Florida Keys, and looking forward to getting out on his boa and fishing. The total cost of his treatment and travel to India was less than $90,000 – one-fourth of what he would have paid in the U.S.

"Everyone I spoke to thought I was a crazy person. 'Why would you go there, you're going to get infected, it’s a dirty place….' Now I’m certainly happy to spread the word to people that you do have choices. You don’t have to lay down and die."

Advice to Americans in need of ruinously expensive surgery: Consider other alternatives too.

Read another story of a solution to costly care for a liver problem, or read Greg Allen's source story from All Things Considered on National Public Radio.